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Archive for the ‘disabled figures’ Category


One morning over the past two weeks, photo taken from sun-porch/room window

A poem I came across, which I like:

Reading Greeting Cards Before and After

His photo in the hallway greets me each day
Being in my life was an extraordinary gift
He left my world leaving a huge vacuum

Still I feel his ever presence in my life
Triggering a burst of smiles and tears
Looking at the gardens he built for me
Coming across a book we read together
Hearing the evening news and imagining his comments
Knowing he would re-load the dishwasher if he were around

An accomplished writer of research papers but not love letters
He’d spend hours searching for my perfect greeting card
Now assembled in a large basket I select one daily
Before I used to read them quickly and thank him with a kiss

Now I read them slowly, sometimes over and over again
Savoring each written word and signed “Love, Charles”
Yet to me his actions spoke more softly
Than the words on any card

—- By Ruth Perry

Dear friends and readers,

This winter I have become more intently aware than I’d been in a few years (since Jim died) of the fragile fleeting character of social life as I experience it. How easily people drop you, are glad of an excuse to ostracize or exclude someone.

One dark morning as I lay in bed waiting for the sunlight to come into my room (with my two cats beside me), I tried to think of all the places or organizations I belong to that now provide me with what social experience I have: above and beyond all in frequency, intimacy (yes) and closeness as well as a spectrum of socializing from acquaintance-polite to friendly to friends where I know something of the person for real and the person me, plus experiences of exclusion, discomfort, hurt, on the Internet as much face-book nowadays as list-servs, blogs, websites, Future Learn courses, twitter.

But after that, what physically in the face-to-face bodies and places-in-the-world included? the two Oscher Institutes of Life-long Learning (at AU and at Mason), classes at Politics and Prose (Northwest Washington Bookstore-as-community center), the Smithsonian (more impersonal) lectures, twice a year conferences (ASECS), the WAPG, an Aspergers group in Washington DC (I rarely go but I keep in touch by email), a summer film club at Cinema Art theater (once a month for 5 months). I live with one daughter, Izzy, and occasionally the other, Laura, visits or we go out with her. I’ve joined on three and this summer I’m going on a fourth Road Scholar trip. That’s it. I’ve counted 22.

Two of the experiences over the last two weeks have been especially fun — or felicitous.


Covers of audio recordings

In a dramatic reading class I listened to people read aloud passages from Dickens and we discussed Dickens, reading aloud, listening to another read, in a group, by a CD audio in a car, or reading silently (how they differ) and one I read aloud (very well if I do say so myself), the opening chapter from Pride and Prejudice (“It is a truth universally acknowledged” — with that bitter caustic yet very amusing dialogue of Mr and Mrs Bennet), the closing dialogue in Volume I where Mr Bennet tells Mrs Bennet she should not worry about Charlotte Lucas replacing her in Longbourne for perhaps she will predecease him (she finds little consolation there), and then the explosive proposal of Darcy to Elizabeth where he unknowingly insults her deeply and she refuses him. On another I read the scene from Emma where Emma deeply hurts Miss Bates in front of a group of people (Box Hill), Frank wounds Jane by in front of others saying how easy it is to make a mistake at a watering place and engage oneself to someone you don’t want, and Mr Knightley lights into Emma so damningly — all the while we hear the pain of Miss Bates, of Jane, the swelled complaints of the obtuse Mrs Elton. The others read from Dickens and I was astonished to realize that Dickens wrote a near-rape scene at the end of Dombey and Son, where a much abused wife excoriates marriage as then practised — who knew Dickens could be so subversive? Now I wish we had talked more about the spreading popularity of dramatic readings in audoibooks


Just Mercy: Bryan Stevenson (Michael Jordan) and Walter MacMillan (Jamie Foxx)

On two Thursdays at the Mason OLLI I participated in class discussions of movies where the teacher is very good at teaching (he spent decades doing it before retirement) — they were lively, intelligent, fun, one on Just Mercy and the other The Parasite (see further down below).

On Just Mercy: a powerful film done in direct simply ways. I was struck after a while at how little filmic “tricks” of the trade; no flashbacks, not subtle in juxtaposition or dialogue at all. It moves forward,and the language is direct, simple. The movie is nerve-wracking to watch because I didn’t know it ended. The young African American lawyer, Bryan Stevenson (played by Michael Jordan) is almost throughout the film at risk for his life — he patiently endures set-back after set-back and finally gets the case on Frontline from which he gets to go to the Alabama supreme court to ask that the charges against his client, Johnny McMillan (James Foxx), simply be dropped immediately as the original trial was gross miscarriage of justice. It is an anti-capital punishment film. We see a black man who should have been put in a hospital for PTSD and was left to stew and put off a bomb in front of a house and killed a woman, now lamenting and so sorry, a one incident actually killed by an electric chair. They were still killing people that way in Alabama in the 1980s and early 90s? we the full barbarism of it — how there is this pretense of humanity on the day the man is murdered.

As with When They See Us, Dark Waters, and Chernobyl, at the end of the film we see photographs of the real people the actors played. It is very effective to do this. The African-American actor, Michael Jordan, playing the lawyer, Bryan Stevenson, has been snubbed: his performance is as good as James Foxx (nominated for best supporting actor, partly because played Ray Charles in another film)

A third was enjoyable in the class (at Politics and Prose) but it was the books we read and movie I watched that mattered: Olivia Manning’s Balkan Trilogy and Alan Pater and Cellan Jones’s 1987 Fortunes of War. There is so much time to be alone.

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Sometimes it is so hard to get to and from these places. This to introduce a distressing — frightening in implications — experience I had this past Friday early afternoon.

As I was driving from Northwest Washington DC to get to Northern Virginia and took my usual turn to get onto some feeder road which takes me to South 110 and that to South 395, I found the whole roadway blocked. There was no way I could get onto that feeder road. I was quickly hopelessly lost. I became bewildered as I usually do in streets I am not accustomed to even if some of them were familiar to me from previous excursions. My garmin showed itself to be dead and I couldn’t get the cell phone even to connect to the network. I kept making wrong turns and feared in my bewildered state I would get into an accident. Finally I remembered I had put the phone on airplane mode so that it would not disturb a class I had been in. Luckily I was able to find a sidewalk I could park by. I put the setting back and voila the Waze program began to work.

But alas I have never been able to make the Waze program or app talk — or to be truthfully only intermittently. In fact what has happened is once it starts talking and I get home I can’t figure out how to shut it up. I don’t always get an “exit” box.

Another problem I have is I never knew where I want to go west or east — say on 66. I can’t tell what is north, south, east or west. I can with thought say to myself this is left and this right. Is there a long word for this for an autistic person? So that’s my first question. I would feel better if my condition — this has happened before – had a name. Getting lost. Not being able to tell where I am — have a big picture of coordinates unless I’ve lived in an area for a very long. A good pictorial memory but it has to be real buildings or streets I recognize.

So what I had was a map with lines and arrows. I managed to put it on the seat next to me and very slowly attempted to follow all the turns and arrows. It was difficult because Arlington around Rosslyn (I live in Alexandria) is no fun. The ironic paradox is what I knew to be true; I was at most 5 minutes away from some highway if I could figure out how to get to it. What happens is the lines and arrows began to show this way to South 110. I recognized that was one of the highways and going in the right direction. I drove very slow and kept adjusting the cell phone to face me.

Anyway I swung onto the highway from another exit but I could recognize pictorially where I was, and could calm down and saw this way to Exit 27, South 395 and knew where I was and then got home. Whew!

I am like a blind person when it comes to understanding directions or what I am on a map. Utter bewilderment is awful. I have tried buying a new garmin twice. But I cannot program it. All of them require some programming and I have no one to do that for me. Everyone says it’s so easy, nothing to do. I have no idea what to do and twice I have had to take back an expensive Garmin or GPS. The one I have now was programmed for me by a kind IT guy who was in my house shortly after my husband died — and helped me install a computer.

Intensely relieved to be back home. My younger daughter, Isobel, cannot help me because she is autistic and asking her to help, this kind of experience makes her intensely nervous.

My older daughter came the next day and — what happened? — within no time she had no problem.

At first the Waze was silent. Her response was to say “Waze stinks” and download google maps. She tried to look at the settings and could find nothing wrong. She did fiddle with them. Then she tried both Waze and google maps and both talked! We get in the car and both talk. But the problem is she never figured out what I had been doing wrong or what I needed to do to make the thing talk because it was talking. I did see that I often put my own address into location and she said don’t do that, just type where you want to go in the next rectangle below.

The problem is Laura (her name) really had no problem. She clicks away and after a while the Waze program talked. She finishes, somehow an exit box is there, and she clicks on it. Calm as the proverbial cucumber. I did sit with her in my car and I clicked and it talked. She could not fix for me what was working.

So a week and a half from now I have two new places to go. I worry the thing won’t talk for me. Has anyone had this problem of the cell phone Waze not talking — My cell phone is an Apple iphone 8 — I think.

To me it’s a wonder I go anywhere at all. If I were black, I would fear a cop might kill me. Laura installed for me Uber — I have Lyft. This is for my coming trip to St Louis. If I want to find a restaurant I am to go to on Friday night, and then a play on Saturday the only way is to hail one of these cab services there and back.

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The destitute-desperate family in The Parasite

Bong Jong-ho’s Parasite is part of my theme tonight: it seems to be a study of social modes of interaction exposing gross class inequities among three families. I’ve now watched it twice and people you should not miss it. It will absorb and entertain and then maybe horrify you. I am still not sure what I think about it.

First thing to be said about the film is how hard it is to talk about it, part of this Is the story line is unpredictable – that’s why you keep watching (even if it’s not assigned). You get drawn in because you are not sure what is going to happen next at all

Second it seems to me most of the thematic descriptions don’t apply generally. It’s not a thriller. We see a class war only at the very end when the destitute family driven to desperation because there’s another desperate destitute pair of people hidden deep in a many level basement of the super-rich people’s many layered – crack up and out comes from them terror, hatred, an urge to destroy these people who are exploiting them utterly – smiling all the while as if it’s perfectly okay to the destitute to be so exploited. The super-rich husband-father drops his mask for a moment when the destitute father playing a chauffeur for the first balks at an order – and threatens to fire him.

For a horror film (another designation) it’s constantly witty and funny – we laugh very uncomfortably at these desperate people – up to their chins in sewer water when it rains – yet they are endlessly ingenious, crackerjack it seems at surviving – they are all kept at a social and psychological distance from one another.

Realism is besides the point: the mother-wife is unbelievably naïve, believes anything – I saw misogyny in the way she was treated as someone who has nothing to do with her life but make expensive parties – we are better not knowing what happened to the employees the destitute family replaces – the housekeeper come back is living nightmare with her husband fleeing creditors

So I looked up Korean films and could find only a history which offered no interpretation, but I did find an essay on films called “periphery” films. Idea is developed countries, run by white people are at the center, and countries like Korea, Palestinine, Saudi Arabia – countries colonized – Australian are periphery. So I’ll conclude on 4 characteristics such films are said to have and this one has these:

1) An intense focus on place and setting. You never forget this is Korea and the two different houses are centrally photographed to stay in your mind as character in the drama – the people in the semi-basement stealing wifi in such appalling conditions – and the rich with all space hardly enough furniture, gadgets everywhere – I suppose it’s order if order is soulless.

2) A use of folk or story telling traditions – at the beginning of the film a brief fairy tale looking picture seems to suggest that the family is going to get their dearest wish using some stone – and this stone appears in the opening and closing sequences of the film. The son carries it around – it is dangerous and bad things happen around this stone. The talk is in European tradition — the fisherman and his wife, with its moral of watch out what you wish for ….

3) Looking at everything from the point of view of the excluded – no matter what it is or how – you might say those colonized whose everything is taken from them or are not allowed anything – cannot accumulate – so destitute cannot go to college — along with this these excluded people feel they can’t belong anywhere. They don’t fit in. The son says this at one point. It ends on the father in the deep basement obviously doesn’t belong anywhere. Even the super-rich don’t belong anywhere – their home is not a home, it’s an place for the real estate sellers furniture makers gadget makers, party makers to supply and sell stuff to — to make money on

4) Money and bullying. Any time a rich or powerful person is denied anything he or she resorts to bullying. But the predators all of them prey on other predators – -like the destitute family on the original employees – everyone searching for an identity – I saw an Israeli film (art film) where the characters are all seeking an identity – queasy comedy and sudden stark tragedy happen over money and bullying ow or what – at any moment a mask drops and you are facing the faceless

At any time the mask drops and you are facing the faceless

So I thought about movies made from the center as a control mechanism –- say The Durrells of Corfu, which I wrote about in my previous diary entry.

The exact place does not at all matter – they can make a home of anything.
No one bullies others and minimal money does – you need some but not a helluva lot.
The know who they are – they really do.
Point of view is that of the privileged those who assume courts are on their side – no masks – and those who have to wear masks very poignant, like Sven the homosexual man – everyone feels for him.

Last night I re-watched The Parasite, having read about cinema at the periphery (movies made by film-makers who don’t come from powerful countries run by white people, countries not colonized i recent history) and it struck me the destitute desperate family’s behavior is like that of us — when it comes to airplane travel. That is one place middle and upper middle white people come across the treatment poorer people across the globe do all the time. Similarly it appears on the surface and maybe is true that these white people accept this treatment from the airlines. They don’t go to war or paroxyms of rage, the candidates for office don’t use as one of their promises to regulate the airlines and stop their outrageous behavior to everyone but those who can afford to be deeply gouged.

OTOH, the movie makes this analogy hard to see because it calls itself Parasite and in Korean parasitic worm and seems to refer the to the destitute desperate family – a squalid word, and it also means blotches on your skin from such worms. I am not sure that the film is not problematic — partly because in the class I was in many of the people in the room defended the super-rich family: they were paying the others, they were “decent to them;” okay they were tactless and unaware of the horrible conditions of life of the others. But that’s not their fault.

If you can reach it, Michael Wood of the London Review of Books for January 2020 is very worth reading

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How to end this entry? We are today surrounded by creeping and overwhelming fascism in our public media and art — that is the mindset actuating not only the Trump administration. Every day another evil deed, yet more ugly hateful ideas and feelings spewed out. Yesterday the Trump regime rescinded decades of work to change attitudes to protect birds from wanton killing — now you may kill them as you please (and you can have as many and what kinds of guns you want. Public schools? why these are low-class government schools which debased people attend — a sign of their inferiority is no one is excluded.

Human beings need to think more about the nature of our social lives today in the year 2020. What are we seeking? What do these activities of ours depend upon? how or on what basis are we setting up our relationships with one another? Is it to escape from a default setting (to use the ubiquitous Internet jargon) of alienation, a world of cruelty and indifference as seen in Parasite and Last Chronicle of Barset and Curate in Charge? (David Copperfield ends in a wish fulfillment fantasy and the emphasis is — to be fair to the book — more about the richness of a life of solitude, of inner development of self and strength and also about death and sheer vulnerability.) These questions are urgent as we find ourselves more and more without the solid social support systems our daily lives and attitudes (beliefs in our togetherness) used to provide, more and more turning to the Internet worlds, to voluntary organizations unsupported by anything but human need.

Ellen

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Izzy and I at the National Gallery on Boxing Day

From the Christmas Revels, which when Jim was alive, he, I, and both daughters at first, and then just with Izzy, would regularly find a performance of somewhere in our area. Izzy now listens to it at least twice on CDs she has every year. It ends with Amazing Grace.

THE SHORTEST DAY

So the shortest day came, and the year died,
And everywhere down the centuries of the snow-white world
Came people singing, dancing,
To drive the dark away.
They lighted candles in the winter trees;
They hung their homes with evergreen,
They burned beseeching fires all night long
To keep the year alive.
And when the new year’s sunshine blazed awake
They shouted, revelling.
Through all the frosty ages you can hear them
Echoing, behind us — listen!
All the long echoes sing the same delight
This shortest day
As promise wakens in the sleeping land.
They carol, feast, give thanks,
And dearly love their friends, and hope for peace.
And so do we, here, now,
This year, and every year.
Welcome Yule!

During this time Izzy finished a rendition of another of her expressive songs; she has been working on this for a couple of months now; she is basically a light soprano; somewhat outside her range she is singing her heart out.

The song is by Irene Cara

Sometimes I wonder where I’ve been,
Who I am,
Do I fit in.
Make believein’ is hard alone,
Out here on my own.

We’re always provin’ who we are,
Always reachin’
For that risin’ star
To guide me far
And shine me home,
Out here on my own.

When I’m down and feelin’ blue,
I close my eyes so I can be with you.
Oh, baby be strong for me;
Baby belong to me.
Help me through.
Help me need you.

Until the morning sun appears
Making light
Of all my fears,
I dry the tears
I’ve never shown,
Out here on my own.

But when I’m down and feelin’ blue,
I close my eyes so…

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We managed three Christmas events for this year’s Winter Solstice.


From Come From Away: a scene where the local inhabitants welcome the US passengers

December 21st, a Saturday, Izzy, Laura and I went to see the extraordinary (in the depths of feeling it occasionally reached) for an group concept, Canadian musical; and astonishing (in sudden individual moments, separate soliloquies, character sketches), Come from Away. It is the upbeat story of how a large group of American planes were landed in Newfoundland, Canada, because the area had a large unused airport, and how the people living in the towns all about welcomed the people on the planes, took care of them.

It’s a story we are much in need of since the spread of hatred and fear these past few years by Trump and his regime, and others like itaround the world. I’ll content myself with a review in the New York Times. Ben Brantley explains this show and its context better than I could.


The 12 players as puzzled passengers

I had not thought it possible to write and embody an meaningful humane tribute to the senseless slaughter of what happened on 9/11/2001; a reaction to decades of cruel repression around the part of the world called “the Middle East.” If it comes near you, try to go see it. It cannot be a film; it must be done live on stage.

Afterwards we ate in an unpretentious Asian restaurant (food yummy, wine good), joined by Rob, near where Izzy & I live, all four exchanged gifts. I got two velvet-like blankets, soft and warm, one for my bed, and one for my desk chair. The book Izzy bought for Laura a time-traveling tale: The Future Of Another Timeline — Annalee Newitz. I bought for Laura Charlie Ann Anders, The City in the Middle of the Night and for Izzy, Adam Rippon’s Beautiful on the Outside: A Memoir. Rob got a cooking book: Midnight Chicken & Other Recipes Worth Living for by Ella Risbridger. You see one piece of evidence that the two cats are of the opinion my presents were for them.

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Central to getting through Christmas Day: around 1 o’clock Izzy and I went to see Greta Gertwig’s splendid Little Women. It’s so good I haven’t got the time or vocabulary to list all the elements that are so effective and right. Gertwig has updated the material and yet kept the core content of the book intact, with the old moods, charity, and deep sentimental feeling. By the astute use of flashbacks for the first third or so of Little Women (Volume 1 of the two, the childhood years and most straight didacticism of the books), and making the last part of Little Women and most of Good Wives, the present, a reverse in emphasis without loss was achieved.


Jo, Meg (Emma Watson) and Amy Florence Pugh) walking about Plumfield Academy, the new school run by Jo and Prof Bhaer (Louis Garret)

It is thus an open scandal, disgrace, that nothing is going to be done about that fact that this movie — superior in just about everyway to all those now playing, all of them, this movie garnered but one award — for Ronan for acting. Even that is wrong as the film features all four girls and the role of Amy has been transformed from villainess to a heroine as worthy imitation as Jo herself. Thus do we today honor ambition, materialism, selfishness, and the burning of Jo’s manuscript is somehow regarded as not the heinous cruelty it is in the book. After all Jo writes endlessly, she’ll write on and she does. We have a confrontational Jo and Laurie


A confrontational Jo ((Saoirse Ronan) and Laurie (Timothée Chalamet)

And then Amy is made unselfish at key moments, and suddenly it is she who urges Jo to run after Prof Bhaer. Until now Jo needed no help from Amy to retrieve her love. It is very hard to find a good photo of Louis Garret as Prof Bhaer online with Jo, though the movie (rightly in my view) makes this relationship the partnership Jo chooses in life.

The movie auditorium for Little Women was far more crowded than those showing other junks — Cats, action-adventure, moronic Marvels and the deeply reactionary The Irishmen (a re-make of On the Waterfront in effect). I did see two men falling asleep. Is the gender fault-line that big? if so, well then we need to stop making the moronic violent curse-ridden movies and return to 19th and 20th century stories by women. I’m just now watching the 1970s Fortunes of War adaptation of Oliva Manning’s Balkan Trilogy: magnificent, beautiful, intriguing, and the material frighteningly relevant — fascism taking over, gradually killing destroying wreaking unretrievable damage …

Just 3 of the countless favorable reviews (if you include non-professional or unpaid ones like mine):

Some reviews:

https://www.washingtonpost.com/goingoutguide/movies/part-alcott-part-gerwig-little-women-is-a-very-nearly-perfect-film/2019/12/17/ce2ae21e-1eb0-11ea-87f7-f2e91143c60d_story.html?arc404=true

https://www.empireonline.com/movies/reviews/little-women-2019/

https://www.independent.ie/entertainment/movies/movie-reviews/little-women-review-saoirse-ronan-and-florence-pugh-excel-in-greta-gerwigs-irresistible-adaptation-38809685.html

Ronan is now a “celebrity” — she was Mary Queen of Scots (she began with playing a very unlikable young woman in Atonement). Florence Pugh was Cordelia in the powerful (good) Lear movie with Anthony Hopkins in the lead ….


So many LW movies:   Trom Robin Swicord and Gillian Armstrong’s 1994 Little Women: a rare appreciation of the role of Mr Bhaer (Gabriel Byrne) in New York going over Jo’s (Winona Ryder) stories (see my “Christmas in Little Women,” book and films …. )

I am sorry to admit the meal at our usual Asian restaurant was not enjoyable. We finally faced up to the reality this restaurant is going down: this time the service was nothing short of terrible. Half a Peking Duck is no longer possible; you must buy a whole one, but they don’t bring it out hot in front of you and carve; it is pre-carved (yet it took ever so long for them to bring it out), and they had run out of the usual side dishes. We had ordered other dishes but as they seemed not to be coming, we canceled it all and left. We will find another Peking Duck Asian restaurant next year.

Come from Away and Gertwig’s Little Women are filled with progressive social values; semi-didactic scenes of charity, people loving one another, giving, forgiving accepting: works we are much in need of since the spread of hatred and fear these past few years by the lies and control over social media Trump and his regime have achieved, and others like it around this cold commercialized world. Journalists who once would have been continually helping are today regularly killed, imprisoned, cannot find paying jobs where they can learn to do investigative reporting.

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Mill in Winter, Edward Willis Redfield

Then there was Boxing Day (the 26th). We have been doing boxing day for about 20 years now; the last 8 without Jim but remembering him. How do we do boxing day? we go to a museum, of which there are many choices in DC. This year, like most, we went to the National Gallery. The advertised exhibits were neither that interesting (though I admit one was filled with precious historicals) or large; one small one not mentioned much, that we just happened upon (the best way) of the work of a 15th century Spanish sculptor was fascinating: remarkable moving statues and bas relief; the film brought the figures close up and was a good travelogue through Spain in its own right. For me best of all were old friends — paintings I like especially to look at and return to. The pizza wasn’t bad either (in the cafe) and people ice-skating just outside to look at. Above are a photo a kind African-American young man (with a friendly family, wife, three children) took of Izzy and me in the central atrium (high up is a giant Christmas tree ball — there were two of them above the flowers this year) and a reproduction (it does not convey the quality of the impasto white paint and just glorious sense of space and sky) Mill in Winter by Edward Willis Redfield (one of my favorite pictures in this museum, an “old friend”).

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I did have some good conversation at a Christmas luncheon with the other teachers and volunteer board members at OLLI at AU early in December, and there was a party on another later afternoon in mid-December — not as good because however well meant the noisy band got in the way of what most of the people were there for — to talk to those you don’t see all term.  Izzy skipped her Christmas dinner with her Aspergers Adults club this year (sometimes her outings with them are a trial, as in a recent dance), but she appeared to enjoy her party at work (the Pentagon Library). Apart from my own Christmas movie watching at home, and reading about and around Christmas (about which see, What do we mean by a Christmasy story & C.S. Lewis’s A Grief Observed), this exhausts our going out. I socialize on the Net and she does too –in her case this year through exchanging and reading aloud original stories with other people on a website.  We fall back on and support one another & our cats love us too, and we have our tree.


I am irrationally fond of the tree each year — somehow it is a cheering sight (if not over-decorated and a real tree)

In my view the way some practice Winter Solstice can be very stressful for people, for a good deal of unreality is expected and imposed. Family get-togethers are potentially fraught times. For older people they are often facing increasing deterioration (I can’t drive at night so that’s why Izzy and I are not going out New Year’s Eve for the first time in 4 or so years; I’ve now got a case of eczema because of the stress I’ve had to deal with on the Net), relatives and friends have died in the previous year. Do you know what I’ve liked? I think its rituals can make many people lonelier, especially if you are someone who doesn’t have other people to do these rituals with or feel yourself not comfortable or wanted among those you can go to. I sent out 20 paper cards and about the same number of electronic Jacqui Lawson cards, and in return I had letters from old friends I hadn’t “talked” to in quite a while, and a renewal of feeling. Perhaps the best way to endure and enjoy what you can is think of it as time off, a time to remember, time (if you can) to gain some perspective.

Ellen

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Helena Bonham Carter as Eleanor (55 Steps, 2017)

Friends,

Tonight I’ll concentrate on one kind of experience I’ve been having a lot of these last few weeks. I’ve been watching movies screened for me, and screening movies for others in my classes. I’ll save the Tudor Matter movies for Austen reveries (especially a great one I’d never seen before, Henry VIII, scripted Peter Martin, featuring Ray Winstone), and the film adaptations of Howards End (1992 Merchant-Ivory, 2018 Lonergan for HBo) and now Room with a View (1985 Merchant-Ivory-Jhabvala, 2007 ITV Andrew Davies) for a blog on E.M. Forster, of The Nun  (1966 Jacques Rivette, 2013 Guillaume Nichols) for a blog on Diderot. What unites the rest of them?

That film has become the central medium of our time? Izzy and I also saw this past weekend a moving and creditable performance and film of Sanson et Dalila (music Camille Saint-Saens, with one exquistely beautiful song, “Responding to your tenderness” the refrain) at an HD Screening (Robert Alagna especially effective up close). Yes it has, but something else, which may be seen as a push-back against what is happening in the powerful US gov’t.

Daily the behavior of a large but countable number of groups of people who have power over the well-being, prosperity, liberty of millions of people literally around the globe grow more heinous, and what do I discover myself effortlessly watching: a series of movies exposing similar behavior of earlier groups of people. Just in the last three or four weeks or so: Battleship Potemkin, Journey’s End, Judgment at Nuremberg, A Dry White Season. As with the harassment, rape and humiliation of Christine Ford, film-makers can make these with impunity as it might seem to those countable groups of people. The Nazis at the of the Nuremberg trials were most of them set free within a short time; the situation in South Africa in 1989 was desperately grave as the South African courts would do nothing to stop mass murders and torturing of black people. One black man manages to take revenge on one chief torturer. All the men is the Journey’s End, and which generals were ever called to account for this mad slaughter. Potemkin escaped the ferocious wrath of the Czar because the Russian armed forces would not fire on them, but then no one would take these men in at any port. Story after story ends this truthful way. Last year I was stunned by Paths of Glory. Everyone in an army unit stood by while a single innocent low rank soldier was scapegoated in lieu of the general who knowingly through hundreds of lives away. Probably none of these could be made in most of the states controlled by the people I began with.

What I wonder is if telling a particular local story has more resonance. Half the population of Yemen is starving to death, and it’s hardly mentioned in mainstream or most media, but the murder by torture and dismemberment of Jamal Kashoggi is this week being heard all over public media as detail by detail is let out into the public. It is true that in the movies I’ve named our attention is called to particular protagonists, complicated victims and heroes and heroines alike. How do you sear the consciousness of someone? Diderot in his essay on slavery said it was so hard to eliminate as the world is filled with people who feel no guilt over using people as abject slaves. This to introduce yet another movie that will hit you hard based on a personal story and single performance. As 55 Steps (alternative title: Eleanor and Colette) begins we see Helena Bonham Carter being shoved, into a room where there is only one blanket; she is wearing white gown used as a strait jacket; she is shouting and protesting and begging the crowd of people not to imprison her in that room, not to inject her with the drugs and they throw her on the ground, hold her down and inject her. She goes silent and still and then begins to twitch. They walk out, shutting the door behind them. Only one high window. She soon has to go to the bathroom and no one will answer her calls for help, so she urinates and defecates in her gown and all over the floor.

It’s unforgettable. How it happens that when she is let out, cleaned, and put into a room with a bed, and given food, she has the ability to phone for a lawyer we are not told. But she does. Slowly the story emerges or evolves. she is told by Colette Hughes (Hilary Swank) that the lawyer can work to release her pretty quickly, but she can also agree to stay in the asylum longer in order to argue as representative of a class action suit. (By the way the present supreme court has done all it can to stop class action suits). Almost unbelievably Eleanor opts for the second choice. Had this not been based on a real story, I would have said here is where it is not believable.


In court with Jeffrey Tambour as Mort Cohen and Hilary Swank as Colette Hughes

This is another protest film, this time on behalf of mentally disabled or troubled patients. She seems originally to have been epileptic and still can have minor seizures. Mark Bruce Rosen Bille August, and Sarah Riser dramatize how the attorney, Colette Hughs (Hilary Swank), with the help of a professor of philosophy, Mort Cohen (Jeffry Tambor) over the course of many hearings and trials managed to persuade a judge and then a review board that patients have the right to refuse medication even when they are mentally disabled. Despite several other scenes that were for me deeply distressing to watch, and although this woman died fairly young because these drugs had so weakened her immune system, she succumbed to a kidney infection (age 47), this is an upbeat story. It’s not just that Eleanor’s case was won, but that we were shown her through a camera and script that respected her as a full human being. She was not made into a plaster saint. Her very experiences taught her to survive by being obnoxious, being difficult, telling uncomfortable truths to those trying to help her (like I embarrass you, don’t I?) or demanding they accede to her needs however inconvenient at a given moment. She needs time to find a dress or suit that looks decent on her awkward body. She needs time to be listened to. She intrudes herself, is a busy-body, she likes crass music. She is unembarrassed to ask about someone else’s religion or to impose hers on the shared space equally as more discreet ways of coping. In the story she is Catholic. She is determined to be who she is. One has to live with her not understanding everything and being loud.

Carter’s performance is the film. She makes her character so touching, brings out her tender heart — for she cares for the other mentally disabled people around her. She is not shy and gives a Christmas party for these people to which her lawyer, now become a friend too, comes. She gives advice to the lawyer about how to handle her boyfriend. We do like how the professor is won over to fight for a first amendment right to speech as part of an argument — he fears to bring this up will make the case harder to win. I have seen Carter get so many good roles and have wondered why she did, as I never was that impressed with her performance. I admit I thought she was given characters not that hard to portray. Well here she is given something precious to do, make us feel her character is precious and like any living creature as worthy of the life she can achieve as anyone else. The film makes the point because you are disabled one or more ways, that does not incapacitate you from other achievements or other talents. She can get home by herself on a bus with difficult suitcases. She can live alone, pay her bills, take complicated medicines, find places.


In some shots, Carter is meant to evoke the Bride of Frankenstein: Frankenstein we recall is a protest figure

As I was watching, I found myself very distressed; I could hardly keep my eyes on the screen, and it was only that this kind of cruelty was forced on Eleanor fully before our eyes the one time, and that tin the case of the others (we do glimpse a couple of others cases), we see in passing a girl chained to her bed, we hear crying, terrible crying, or begging not to do this to her, in the midst of a plot-design which is moving upwards. The lawyer comes. Despite the lawyer’s warning, she might not be able to get Eleanor released for quite some time (even years), she is released within months and that’s happens quickly in film time. So that made what we were seeing more emotionally endurable for me. The way the film “worked” was centered on Helena Bonham Carter and as we feel her helplessness and distress and see the faces and behavior of the perpetrators (called doctors, nurses, assistants), it is driven home into our bones or hearts or feelings, how profoundly wrong this is — if we have any decent mind (I realize that Trump and regime would laugh or despise the women or simply never go to a film like this).

Such a film is frightening for me to watch. As I watched I felt there but for Jim could have gone I. It’s seeing what one dreads most put up before you. I can speak with authority. I have spent a week in a ward in an English hospital, trying to recover from a breakdown where I had just sat and cried for days. In the US I could not have had the benefit of a hospital without spending thousands. No one forced any drugs on me. Again in my very late 20s, early 30s, my state of mind was intense and fragile because I was finishing my Ph.D and didn’t have the skills to pass an interview and so became inwardly distraught as I saw my opportunities lost. I was held up by Jim, and a year or so later by a proper psychiatrist in Virginia. The right help and the person stays in society; the wrong and the person is cast away and made much worse. This is one of many areas where US society is going all wrong. Individuals are not valued because money comes first, and you can only escape the vise if you have high status or rank.

Maybe others can imagine themselves so caught up and then victimized. In small compass this is what the new psychiatry (not worthy the name does): insists on conformity, makes psychology a mild boot camp (mild is there only for social reasons of writing this). You find yourself in a mild form of boot camp; you are not validated, not comforted. I was told by one person, Oh you’re afraid to swim (I wasn’t but used that as an example), the thing to do is throw you in the water where it’s deep. Oh you find yourself abroad and unhappy; just turn round and go home. As if by magic. Completely the wrong kind of personality is encouraged to become a psychologist or psychiatrist, and then they do the bidding of the drug industry. And I know from close association with disabled people that they are treated as morons and one disability is considered the whole of the personality — if say the person doesn’t dress fashionably. That’s why the film-makers dressed Carter the way they did.

So the film has accomplished its core business: make you identify so you will want to act on her behalf. At the same time by making her such a difficult personality (again she has not learned much about socializing and what socializing she did was meet by derision or incomprehension), we see that this is not a sentimental portrait, and then when she does accomplish a lot (as I’ve outlined). It’s one part of her mind though it affects her looks. I learned to be angry at myself for at first being embarrassed at how she dresses somehow wrongly. When at the end she dies, I did think to myself, it is going over the top, and perhaps the funeral oration by Colette was repeating what we had learned too explicitly. But then the credits inform us Eleanor Riese did die age 47 as a bye-blow of these drugs. My friend, Vivian, felt that her years on drugs left her debilitated, unable to sleep and who knows if these years were not unrelated to the cancer that killed her at age 62. Camera shots of the real Eleanor Riese and then we see how Carter was dressed and behaved to look like her and the real Colette Hughes and Hilary Swank ditto.

I had worried so for Eleanor. Even if the constitutional right was proved, would the doctors obey it? would another case take away that right? could she be hurt in her apartment. Now dead, she was safe from all these.


Now and again a nurse is decent: after she wins her case, a few step forward to tell her they had not wanted to behave the way they had (then why did they so? they could quit, refuse to go along)

I have read many times that autistic children such as Izzy once was (at age 2) are sometimes put in institutions and never have a chance to develop or fulfill themselves. I’ve been reading Louise De Salvo’s Virginia Woolf: The Impact of Childhood Sexual Abuse on her and her work. I am completely persuaded by De Salvo that not only was Woolf abused sexually and many times, so was her sisters Stella and Vanessa emotionally and intellectually abused, and her half-sister Laura institutionalized because she wouldn’t obey the conformist patterns demanded of the Victorian child in a strict patriarchy. I’ve mentioned I’ve been watching, reading, following a course on Violence Against Women on Future Learn. The later weeks are on the survivors of abuse, how they fare afterwards, how they are treated by society, what the trauma does to them. They make the point that trauma can cut deep and be caused by banal everyday behavior in life, if that includes the right of authority figures and men to harass, humiliate, rape, beat, silently enforce patterns of behavior. We are shown how case workers fail the victim because they stay at a high level of abstraction, turn away from the particular patterns of the perpetrator and demands that the perpetrator change his ways. Worse of all is the punishment for complaining and that is what that opening scene in 55 Steps records. So 55 Steps has general application. The underlying paradigm is the one Diderot uncovers in his La Religieuse, or Nun (which I’ll blog about separately under Austen reveries).

The film was first screened in a festival for prizes in August 2017, and it has taken all this time to reach a Virginia film club; it has yet to be distributed generally so I write to urge people to go see it if they have the slightest chance. As you can see over the past few weeks as a result of the courses I’m following, I had several others I could have chosen to write about. But somehow this common experience from the now abusive world of psychiatry and violence against women and non-conformist seems to me to reach more of us.


As friends, watching a wedding

55 Steps are the number of steps it takes to reach the courthouse room where Eleanor’s case is adjudicated. She counts the steps as they go up. They are the two lawyers who holds her hands and go up with her, steadying her. She counts the steps to get to her apartment too: 27. I remember Laura and I counting the steps up to the Milan apartment last spring after a few days and nights in Milan. The apartment on in effect the fourth floor, with its narrow stone stairwell and steep steps hurt one’s thighs after a long day. I had to pull myself up sometimes. As Eleanor was pulled and pulled herself up.

Ellen

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Vanessa Bell, Interior with the artist’s daughter (1935-36)

Friends,

You see before you an image I’ve just scanned in using my new computer to test whether the computer’s imagery making gadgetry is working. It is. So too its print making capacity. Yes, I’ve acquired a new Dell PC Desktop Computer, and am almost “back in business.” Not all my files have been transferred (precious ones not here here include the Charlotte Smith files) and a few other glitches and helps in installing, and I’ll be back where I was on May 18th when my previous computer gave up its inner ghost. These two weeks I’ve again learned what a remarkably able computer is my laptop in the corner, a Macbook Pro (apple).

I’ve two themes tonight: library memories and recognition of some contrasting aspects of human experience. The first is a result of coming across an article in the Times Literary Supplement (probably my favorite periodical) for May 25, 2018, “Speaking Out of the Silence;” at the Hay Festival this year (I’ve no idea what that is or where it’s held), speakers were asked to share “significant memories and thoughts relating to libraries.” I notice it because I would and this past week I renewed my Reader Identification card at the Library of Congress for the first time since around 2003. I was required to sit up close face-front to a camera:


A bit blurred because it’s a cell phone photo of the card’s photo of me (this past Tuesday)

I had come to read a rare book by Winston Graham, one of his pre-Poldark novels, The Dangerous Pawn (rather good, promising, containing many of the Cornish elements, melancholy, quietude, and early sketches of interesting characters later found in Poldark country) and the next day spent as much time as my strength allowed reading it in the main reading room. Upon first coming in and settling down, I thought to myself, how glad I am “I made Izzy a librarian.” Of course I didn’t make her a librarian, but it was my idea for a profession for her. I wondered why my parents never thought of it for me. How lucky to sit in the silence surrounded by learning. At the Pentagon where she is, and here in this library, the books are open to all.

Tonight these memories leap to mind for me. (I have many others.) The first at age 10 or so this momentous moment of being taken by my father to the “adult” part of an enormous library” — so it seemed to me — on Sutphin Boulevard in the Bronx. It was a walk and bus ride away from our apartment house. We climbed up a back stairway, and I was allowed out to take out books with his card and then given one of my own. I have to have been 10 because we moved from the Bronx to Kew Gardens, Queens, by the time I was 11.

Age 19 or so being let into an art library on 52nd street in Manhattan to study Delacroix’s illustrations for a stage production of Hamlet in Paris – it was part of my term project for an art history course art Queens College. I had to have a letter of introduction from the professor. I was not prepossessing looking I could see from the librarian’s response to me, but after a few days of quiet toil on my part, studying sketches, the librarian realized I was harmless and hardly paid attention to me at all. I didn’t have to take the final after writing that paper.

A whole slew of Saturdays (literally years) spent in the Folger Library reading poetry by women whose first editions and manuscripts the Folger had: Anne Finch (18th century English), Vittoria Colonna, Veronica Gambara (Renaissance Italian). That was the later 1980s to early 1990s; more recently in the Library of Congress around 1999-2000 I examined the first illustrations to some of Anthony Trollope’s novels by looking at periodical issues, and then around 2004 reading Anne Murray Halkett’s fragments of autobiography and a broken-off journal back in the Folger again (she was a 17th century Scots woman active in the 1640s and 50s civil war)

What unites these is how happy I was to be there, how much I enjoyed such moments. I did like research at the New York Public Library in the 1970s but it never had this cut-off idyllic sense of quietude. It was there I first became acquainted (so to speak) with Charlotte Smith (all but two of her novels were still rare). And once at the Morgan Library while I was writing my dissertation on Samuel Richardson seeing the one page fragment in his own handwriting towards a fourth novel: to be called Mrs Harriet Beaumont. Now she exists only a widow glimpsed in his Sir Charles Grandison. I remember this because the librarian hovered over me.

I asked on TrollopeAndHisContemporaries@groups.io, if anyone there had any memories to share and two generous people told of precious moments and a history of the self through such memories.


Another Vanessa Bell, A Bird Cage (yes I’m reading a good biography of her and another study of her work and that of Duncan Grant and Roger Fry)

The other is a theme or variation on related topics suggested to me by a social experience I missed out on last Saturday (the day after my computer failed). I had planned to go to monthly meeting of Aspergers adults in Washington, D.C, but in the mid-afternoon I had been further demoralized by an encounter related to my attempt to re-learn to use my Macbook pro, and its updated Word writing program experience and so gave it up when I saw rain. Or so I told myself. I had been in two minds about going, and know now I should have gone since I regretted missing it.

Among other things, they have a monthly topic, which they discuss, and it turned out to have been a significant one for me: learning to recognize significant issues and how to we can choose to deal with them. Well, I thought immediately that I have a hard time sustaining friendships. I probably recognize this one so I’m not sure it fits what was asked for, but I would have liked to talk with others about this since recognition hasn’t helped me much. Some of what happens I can recognize a bit and try to counter it: that is, I seem to become too emotionally dependent or just too close, often times when I’m really not. This is apparently how I can be perceived and I can’t always realize this is a response on the part of others or there in my behaviors. When I can recognize this is happening, I do curb it. But beyond that there are other things that happen, so multiple or various because human relationships are, and what can happen I recognize I have done something which irritates the other person only as or after I’ve done it. Usually after I’ve done it and later so it is harder to apologize. Sometimes I don’t know what it was and long experience has taught me the other person won’t tell me.

Specifically, I was widowed 5 years ago and have made continual active attempts to form friendships and have failed to sustain any for any length of time. Partly it’s that I’m old and by my age most people are utterly embedded in their ways, their relationships, their families. Just about every woman I’ve become close to is divorced, separated, never married. I’ve been unlucky: of 8, the closest a dear friend, also autistic, died of cancer this past spring. I am missing her badly. Two were intolerant, would not make the effort I was making, made fun of me when I tried. Another moved back to Paris. A last grew distant: she lives across the street, also a widow whose husband died of cancer in his mid-sixties and with a grown adult child who lives with her who is also autistic — she does have to stay with him and she has said to me that she cannot have people over too often as her son becomes uncomfortable. She is not lonely as she still have a full time job and she just does not yearn for close relationships after her husband is gone. She has told me it’s like her past has been erased. Finally one person I visited for too long: I realized there were tensions but thought we remained good friends when I left, only to find castigating emails that shocked me when I got home. She had not at all said she was displeased and I know she tried to bully me and I resisted. I’m left with one, many acquaintances and a number of long-time friends who are friends at a distance, though email. NT people think you are posing: surely this technical intuition is not hard. You cannot always be getting lost. Many cannot bear any sign of vulnerability or if you do something different than other people.

I become friends with stray women — people also at liminal points of their lives. So the friend is here temporarily. He is a man in his late-50s, a lost a long-time good job and is trying for a new one here and then doesn’t succeed so has to return home. These have been two lonely weekends without my regular computer and also from teeth pain (a part of one of my dentures broke off — ouch for my tongue; I was two hours at the dentist this week and now am very uncomfortable until the new perment denture comes in). I’d love to hear from others — is there any technique you use to try to recognize if things are going badly; anything you do regularly. I try to be patient, but silent and smiling doesn’t always work either.

I told this to other women on a (closed group) at face-book, and was so relieved to read of similar experiences and trouble where the attitude of mind was that these kinds of estrangements are even common and in their judgement just as much the result of the NT or other person’s failure of understanding. Women will decide to end a friendship suddenly and not explain why. To a person they all repeated in different forms what I gathered from a summary on-line was the considered response at the meeting I missed: one has only so much energy and time in life and it’s actually best to turn away (as it were reciprocally) and cease self-reproach. If it takes you a long time to see this decision on the part of the person, or if they shock you with sudden castigation, doesn’t matter. It is useless and worse (exhausting, leaving no time to do what we enjoy or find real profit in — I’m not talking money or some unreal prestige) to beat at walls of indifference, self-reproach.

The most common response I’ve had to such utterances is blame, or useless unrealizable advice — one is not asking for anyone to tell you what to do. Several expressed surprise at what surprises me (e.g., how so many people feel no need to reply when you write them), how it can be said that autistic and Aspergers people are insensitive! Be glad of the one or two truly meaningful relationships you have, better to stay at peace with yourself and enjoy what is in you to enjoy. People told of how much online relationships can mean.

They also talked of how it’s said or been theorized (demonstration is hard) that Aspergers & autistic people tend to have more early childhood memories, and some they had. I confided (in turn) that I remember some significant events — probably because I went to stay with relatives and this sort of disruption and separation from parents stays with a child. I remember an event when I was around 18 months old, two from when I was 3. In one left with my grandmother, she left the hot apartment to sit up on the roof because she thought I was asleep, I woke to find no one and thought I was deserted forever. In another my mother forced to do something that was deeply humiliating: I made the mistake of telling her I had to go to the bathroom (the way we put it then). In public, by the side of a car she forced me to urinate. I begged her not to do this to me. I never forgot it. And I vowed never to tell her anything again that evidenced need, and I believe I never did. She was not to be trusted to respect me. When I’ve told people this (especially NTs I think) they tell me this didn’t matter, I was only 3 so therefore it didn’t matter (what she did was humiliating for an older kid but not for a 3 year old?) nor should I remember it. My mother also tried to force me to do things I didn’t want to because she thought it was “normal” to want to do x or y. I learned to be so glad she went out to work from the time I was around 10 months old on and off all my life when I lived with her. I think all my pre 5-6 year old memories come from when I was distressed. Missing my father because I was sent to live with other relatives when they lived in an apartment where no children were allowed. Then there are a couple of this lit-up moments from when I was around 4. My continuous memory begins in kindergarten — I was 5-6. I have been told of other events that happened and ways I behaved before 6 but I don’t remember them on my own.

A self-conscious caring what other people think, including those one will probably never see again, ended our thread. The story of how I didn’t learn to ice-skate came to mind. My parents bought a pair of skates for me, and I couldn’t drive so I went with my first husband as my boyfriend. What happened what I was so nervous, anxious I went very slowly and he kept getting behind me and pushing to go faster and wouldn’t leave me be so I fell badly. Later he said “everyone was looking at us” so we can’t do that again and refused to drive me there. Why not? I asked. He just wouldn’t go with me unless I went faster. I used to assume that people would most of them automatically sympathize with me; instead I’ve had two say of course he was mortified. How terrible of you (meaning me) to behave that way. Why should I or he or she care about people we know nothing of? I remain astonished. it’s not like someone driving on the road at 3 miles an hour where others in cars begin to behave dangerously because they have to go slower. But human feeling and need must be crushed under fear of what other people think. Who cares that people might look down on you skating slowly? find you ridiculous. Anyway I never learned to ice-skate and those pretty & expensive skates went into an attic.


Paul Gaugin, Mimi and Her Cat (1890)

The above picture is the first by Gaugin I’ve ever liked. It’s found in one of my late night-time reading books: Desmond Morris’s humane Cats in Art. Morris critiques and presents attitudes towards the cat and what we can know of the lives of domestic cats since we have first proof of their existence, and how differently they have been presented in art. The key to understanding and right treatment of non-human animals (I have been reading in yet another TLS article, Barbara J. King, “Our family and other animals,” May 25 2018) is first to regard them as individuals with complex psychologies in the way initiated by Jane Goodall. Why were cats in particular persecuted for a few hundred years in Europe (partly because they were companions to women?). I will be blogging on this book soon.

Ellen

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Dear friends and readers,

Yes on Friday night while I was watching a movie on it, the movie froze as did everything on the screen. My mouse wouldn’t work. A couple of times I was able to reach the starter menu but I would lose contact. I was afraid to press control-alt-delete (foolish cowardly) and instead just shut the machine down, hoping it would reboot.

It never did. No matter what I did — pull all six plugs, shut the very electricity down, press F8, or F11 or whatever tricks the IT guy said to do on the phone, it would not go past a black screen with the four colored balls turning into a four flags going dim and brighter.

It has thousands and thousands of precious files on it. Well an IT guy (one of the team) came Monday afternoon and said while they could (he could) try to fix the hard drive (where the problem lay) since the computer was now 4 years old, and had been manifesting problems like this for months, what could happen was in a few weeks or less another hard glitch happen. The wise efficient thing to do was buy a new one. He (as other experts can nowadays) retrieved all the files apparently and put a few on this Macbook Pro or apple I am typing on now so I can do my teaching work, my Graham project, my continuing study of Woolf and Samuel Johnson and biography. The movies Jim downloaded are in a separate hard drive which can be attached to the coming new computer. So too can the monitor, my printer/scanner, and loud speakers. He promised to have ordered a new PC desktop Dell computer, which would have a new CD or DVD drive. It will take a little time. I heard nothing today and if I hear nothing by tomorrow afternoon, I’ll starting phoning and emailing to get them started.

I did have several bad periods; first the first two nights before I made contact with the IT people; then last night when I faced I would have to learn to use Windows 10 (though I am promised a Windows 7 menu starter) and a new Word program when I’ve barely begun to use an older one. My Aspergers traits include great difficulty with new technologies. I have no intuition by analogy when it comes to software. I am calmer tonight. You see I can write about this.

This morning when I sat down to do my lecture/discussion notes I perked up. First of all some of it was typed already since I usually over prepare and have more than I can use and thus use it for the first part of the next period. I thought to myself, for the first time in a long time my desk has no machine on it! I sat down and began to write out my notes for tomorrow’s teaching by hand out of my head as I had done from 1972 to 1997. Yes my Mac is on the library table (underneath the other window where Jim’s computer once sat) and I have access to enormous amounts of material on the Net and am surrounded by years of riches in the form of xeroxed articles and books, and that’s a terrific advantage. I remembered Izzy works using Windows 10 all the live long day and she won’t refuse to explain and Laura promised to come over and explain for me the latest Word program. I even used the new Word program just a bit successfully. So I am feeling less panicked over a updated Windows and Word program. Tim (the IT guy) said he would download the latest OpenOffice.org on the new computer too, replace the icons I had on the now defunct desktop.

Now I worry about when the new computer will come as teaching starts June 6th. The last two days I’ve been reading Trollope’s short stories and am near to picking out the eight we will read over a month. I thought back to when my computer died last time: it was a month after Jim died, and in a way it was no surprised. It was he who kept that old machine and its software going; without him it couldn’t last. I can;t remember what I did that first couple of months I had not started teaching, was in effect doing nothing and couldn’t even drive. Perhaps I was so upset this time because I do things now. Instead of berating myself for all my failures over 60 years let’s say (since I was 9 when I in effect “woke up” to realize my parents hated each other and we were very poor) I should look at how far I came from that.

A few days ago on a face-book page for autistic-Aspergers women I tried to comfort another autistic person on that face-book page who had been saying that at 51 she sometimes feels so bad because she can’t hold up the achievements others can. Yes she is happily enough married and her husband is her friend. She has children, but like most non-NT people few friends, is lonely: someone was making the mistake of urging the very values and standards on her of the NT world that injure so, only modifying that she should take her time getting to these. Like a 5 foot person should take her time becoming 5 feet five.

I wrote: I’m 71 and have recently experienced another of my worldly failures [I have, gentle reader, I don’t tell you everything]: I and the person who knows about this will be the only ones probably, but these happen periodically. I had a long happy marriage (45 years) and now am a widow with two grown daughters, one lives with me and we do get along, even love one another. I’ve a Ph.D and a long (honorable) history of teaching in colleges, have published & so on. But when I compare myself with what my peers have done, I don’t belong to their club: I never got tenure, or any full time position (for example). I am very lonely; I have a hard time making any close friends so his death leaves a huge emptiness every day and night too. I made a local friend in the last five years where we became close and she died of cancer a few months ago.

I’d say this: don’t measure your success by imposed standards others take on because their genes and chance permitted it, whether the NT world many of which depend on social manipulation, tactful lying, understanding countless ever permutating unwritten codes. Look where you came from, and and measure your achievement by that, by your real gifts and satisfactions, which you probably had to work much harder for than a non-disabled person. Autism is not a character trait; it’s a group of disabling traits and or not having traits. If you’ve done what was in you to do then you have fulfilled your talents. Don’t berate yourself for what chance gave others’ genes and circumstances: they were born to wealth, or to a family where they didn’t need to socialize as they were so well connected; or in culture where people don’t move all the time. You’ve had your enjoyments from your character which they probably don’t want, don’t understand, don’t appreciate. They won’t congratulate you on your hard work and successes or these experiences which you preferred because they don’t prefer them and they are in the majority. But you don’t need to be on their platform. For myself when I’m feeling stronger, I know I haven’t wanted some of these because of the price I would have had to pay for them. Beating out another person, giving up a personal relationship that doesn’t fit, maybe not having another child, whatever. Writing the essay you want. Singing the song you want to sing in the way you want to sing it. Think of the price of their ticket. Then that you had to (because your genes are different) and wanted to chose a different ticket.

I don’t say that works every day nor the nights; it’s hard to shut out the superficial chatter and boasting and shallow admiration of the world and it dominates in public social life (especially so on face-book).

Virginia Woolf was so lucky to have been born to those she was born to. I think many intelligent people are similarly isolated — that’s why they enjoy conferences in the areas they study or work in. It’s only the very few who are born to intellectual families who have money and rank to pull other families into a circle because how the house looks, how you make dinner all count so even for the intelligent.

Ellen (time to drop the pseudonym at long last)

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An old woman reading — a magnificent painting done in the 17th century Netherlands

There is indeed one element in human destiny
that not blindness itself can controvert. Whatever
else we are intended to do, we are not intended
to succeed; failure is the fate allotted. Our business
is to continue to fail in good spirits. — Robert Louis Stevenson

Friends,

Accept what you are.
Do what you can.
Be glad you can do that.

These are lines I tell myself or some version of them. They help me carry on. I then try to follow them doing what’s in front of me to do that day, and doing what I tell myself I want to and shall do for the sake of events coming up that I can participate in. Participate to the best of my ability and if I can’t do what others do, live with it.

Very sad today because dear close friend for the past 4 years now has been diagnosed with terminal cancer. It has been so hard to live since Jim is gone. One can say live in and on yourself but to do this in my state of several dysfunctions takes strength, courage, cheer and yes friendships.

This one is hard. I have a new understanding — much better, much more accurate — of friendship, its limits as well as its gifts, can picture how many people live on themselves and with others. It’s probably salutary for me to see better, more clearly (like Lear is told to) but honestly I would have preferred to go to the end of my chapter without seeing. In reason or logically it should make me stronger to be able to see clearly, but like when I’ve done something that’s hard for me to do and then people tell me, each time it will get easier (say traveling or some technology), and the act(s) don’t at all get easier (but come accompanied by the same anxiety, intense reluctance, and when they are over the same intense relief). Perhaps seeing makes things more doable because I realize how others are what’s called striving or struggling to do them too. (Of course for some these acts come easy; such people are not admirable, just lucky in their genes, or circumstances.) I’m not sure seeing where others experience similar emotions and where they don’t, makes things more doable.


Roger Fry, self-portrait

“Second-hand books are wild books, homeless books; they have come together in vast flocks of variegated feather, and have a charm which the domesticated volumes of the library lack. Besides, in this random miscellaneous company we may rub against some complete stranger who will, with luck, turn into the best friend we have in the world.” — Virginia Woolf

I’ve been immersed in one of Virginia Woolf’s it seems to me now hundreds of masterpieces of writing, this one a full length biography of Roger Fry. She grasps that powerful turning points for him later in life were when he faced defeat, recognized what he could do and then flourished within his limitations so as to live out his extraordinary gifts. He was tremendously lucky in who he was born to: he automatically went to the best schools, had connections to get to places where he could meet minds equivalent in finest and insight to his own, and he was born sociable: could make and knew how to sustain friendships. I am so moved by his life style: he was partly homosexual and bisexual and sustained deep relationships among men and women that were unconventional. His rooms were beautifully decorated by true art (not what would fetch money or give prestige necessarily at all) and filled every where what he was doing: books, papers, easels, paint, his food on plates because he was too taken up with what he was doing to keep up with tidyness. A man after my own heart. Fry’s art was one she understood, his principles those she lived by as Fry had understood hers: she reveled in his life, wished she could have lived it.

I’m comparing Woolf’s book to Samuel Johnson’s life of Richard Savage, considered his masterpiece in biography. What a contrast from the point of view of failure. Savage a self-deluded wildly behaved “genius,” born with no advantages but that of “intellectual greatness” (Johnson’s phrase) whose “eminence” because of such gifts just made him a better known instance of of how such things contribute very little to worldly success, happiness, or fulfillment — all of which Roger Fry knew, partly the result of his having been born with the extrinsic advantages Savage lacked and didn’t know how to or in his world could not acquire. It was not just bad luck as Savage also had some innate awful traits of vanity, luxury, scorn for those beneath him (as he saw this), and he could not control ill-advised responses, like anger (when he desperately needed to). His sexuality is not clear; at the time (not in Johnson’s biography) he was linked to at least two women, one Eliza Haywood supposedly had a child by him, but I wonder if he was homosexual or bisexual. It is as extraordinary a story as Fry’s is, only far more flagrantly breaking all taboos. The man may have been in effect homeless, living on the streets, in taverns, for some 28 years; at 46 he died in debtor’s prison, surely from exhaustion and the terrible wear and tear of his body and mind as much as anything else. Johnson was 35 at the time he wrote the biography, living on little bits of money, and saw a possible fate for himself in Savage.

“They are surely happy,” said the prince, “who have all these conveniencies, of which I envy none so much as the facility with which separated friends interchange their thoughts.” — Samuel Johnson, Rasselas


Van Gogh, A Field with Poppies — Woolf begins and ends her biography of Fry with his utterances about poppies

I’ve been following a Future Learn course on autism for three weeks now and have some thoughts about it. It’s done by a group of people running a center in a British university (Kent) for people on the autism spectrum. They have a variety of degrees and positions that legitimate them — and give them salaries. What are they doing with this precious four weeks in public on the Internet they are given?

They persist in asking, Does Autism Exist? & seem to doubt there is such a condition. They know better. They present evidence it does, two of them are clearly autistic themselves — or Aspergers Syndrome as the high end of the condition, where people come closest to non-disabled functioning and are highly intellingent in reasoning, writing, reading, understanding, used to be distinguished. Logically from what they show, if it’s amorphous, cannot be confirmed by scientific method that is unassailable, and manifests differently, there is a (laughably) strong base of similarity. Like cancer, the basic disability or problem comes in different manifestations, but we don’t doubt cancer exists.

I’ve decided that they mean to counter intense hostility by the neurotypical world: my experience is the hostility only goes away when a NT has an autistic person in their family or as a friend. Even then, not all the time, and many inside a family especially (where they cannot get rid of the tie) want to doubt the person is autistic. How painful this is. How painful this Future Learn course. It means such people don’t want to recognize the autistic and refuse to acknowledge they exist. I know this is what people without disabling conditions do with disabilities (I’ve reviewed & read enough books on disability to know this), and with this one mental they can deny even more readily.

So I don’t exist. One of my daughters doesn’t exist. Aspergers Syndrome which describes the part of the spectrum she is on and I’m almost does not exist in the book any more.

The Future Learn course is doing little good to the Aspergers or autistic person: by spending so much time doubting autism, the speakers don’t have the time to go into individual characteristics. Or they don’t want to — two of the three weeks have been unusually short (less videos, less essays than most such courses). I suspect they fear evoking ridicule and hostility. Open objections that could become obnoxious. So they don’t talk about specifics autistic people can’t do, only try to assert through photos how autistic people are social, are made happy by having friends, just don’t know the unwritten codes and social behavior that gains and sustains them.

What they have been willing to discuss (again in general terms) are depression & anxiety as “co-existing morbid conditions.” The language chosen is, shall we say, unfortunate?

Then they show reluctance to say these two linked conditions result from autism & are a response to the way society treats the autistic and how society is organized along neurotypical lines w/neurotypical expectations. So I must spend 4 traumatic hours trying to upgrade a computer with someone’s help so I can even have an app for a power-point presentation; today four more for installation; and now my older daughter may help me learn to use this software and I know that still I might not be able to do such a thing in public. Too nervous. Or I can’t travel alone without it becoming an intense ordeal because I know I get lost. These are crippling conditions and it’s natural to be depressed, would be unlikely not to produce anxiety.

I’m sure they recognize the worst problems of the disabled are mostly the result of the way the larger society refuses to recognize and help them. Books on disability begin with this insight (see, for example, Fictions of Affliction). Deaf people have gone furthest with this, declaring themselves a simply culture, which is not quite so. Not to hear is to live in danger. The alphabet is based on oral sounds

You are given room to comment as “a learner” in these Future Learn courses and I watch people dialoging or commenting alongside one another. So I told the people who invented and have enacted this course they are not helping the autistic by this approach and they are not countering the hostility of the non-autistic by their innocent films (showing autistic and non-autistic babies interacting and then supposedly disproving stereotypical pictures of how autistic people look).

It’s them being timid and is, unfortunately, matched by timidity I’ve seen in other of these Future Learn courses: say on colonialism. The people there were afraid to offend (I now realize from having taught two courses in the Booker Prize book formula and discovered that people drop the course because they identify with the settler colonialists, the imperialists) and spoke in jargon-filled words (like marbles in their mouths) lest they be understood too readily.


Katy Murphy as Jenny Wren from the 1998 Our Mutual Friend by Sandy Welch

From Charlotte Mew’s The Changeling

Sometimes I wouldn’t speak, you see,
Or answer when you spoke to me,
Because in the long, still dusks of Spring
You can hear the whole world whispering;
The shy green grasses making love,
The feathers grow on the dear grey dove,
The tiny heart of the redstart beat,
The patter of the squirrel’s feet,
The pebbles pushing in the silver streams,
The rushes talking in their dreams,
The swish-swish of the bat’s black wings,
The wild-wood bluebell’s sweet ting-tings,
Humming and hammering at your ear,
Everything there is to hear
In the heart of hidden things.
But not in the midst of the nursery riot,
That’s why I wanted to be quiet,
Couldn’t do my sums, or sing,
Or settle down to anything …

I’ve finally taken to sitting in my sunroom, only this week through the windows I saw much rain. It is very quiet there, no TV, no computer, no radio, just a silent clock. A comfortable chair, tables, lamps, some of my books, two smaller bookcases of DVDs, a thick cream-beige rug, the walls a soft light green. I read more this way. Settle down to my book friends.


My room of my own in the evening: during the day imagine Snuffy cat sitting along the top and Clarycat by the radiator, me in the chair …

I know some peace here,
for peace comes dropping slow

Miss Drake

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I wish there were no such things as Teeth in the World; they are nothing but plagues to one, and I dare say that People might easily invent something to eat with instead of them. —Jane Austen, Catherine, or the Bower

Friends,

Can you imagine yourself being surprized to discover you have had major surgery. That’s my case. Not until the ordeal was almost over did I realize that was what had happened, and not until today, the fourth day afterward and I still have strong pain in my lower jaw and gum, and can’t eat most foods, what major surgery brings on one. I have had major surgery voluntarily three times: all three (of four such volunteering) I have had a hemmorhage (twice vast). Maybe I missed it because the knives (tools they are called) were not aimed at any central body organ or vein, but my mouth.

Gentle reader on Wednesday I had 4 implants planted in my lower gum — implants are thin pieces of metal, two different kinds melded onto a structure that from a x-ray looks like the bottoms of my teeth used to when X-rayed. You might recall I said I had had an abscess in one of my three remaining teeth on the bottom of my jaw, that the one near it became infected, and the one left (poor lonely calcium) could not support my partial denture any more. That I decided I want teeth in my mouth, tired of dentures coming away, not quite fitting, the horrible tasting “adhesive glue-cement.” Well I arrived at my dentist at 9 — I shall call her Veronica Archer. She had said she was cancelling all her other appointments, but I didn’t realize or didn’t think that meant this ordeal (as I began to call it by noon) would go on all day. It took from around 9:15 am when we started, until around 4 pm, with one hour off when one of her three assistants was preparing the denture. Basically she has built me a new jaw. The morning was drilling long holes in my bone in my mouth, and then inserting these pieces of metal, and then on top of them screwable buttons. The insertions had to be done three times to get it right. She then sewed my all over the bottom mouth, everything tucked in. I needed more anesthesia for that; I’d already had two full bouts.

Time out a bit as my legs began to go into spasms.

She had two assistants for this first phase, one was guiding her, someone sent from the company who sells all the material. I am the first patient Dr Archer has done this operation too. She was learning on me. Hitherto she had done say two implants, but never the whole jaw. I didn’t know that. I knew she has a certificate as a dentist and that she puts implants in and does other surgery (root canals, crowns, whatever). She never refers me anywhere; she does everything. Then her assistant from Ohio, also a dentist but specializing in implants. He does nothing but implant over and over — Abdul Gawande says this is the kind of person you want doing a particular procedure, someone who does it as his central trade. put four tiny screws in and then he worked at fitting the actual denture. At that point we took an hour off. The dentist took me out to lunch and I had a bit of pasta but couldn’t eat it really.

Then back for 2 hours to get the screws and denture to fit one another.

Dr Archer is a young black woman of around 43, and there are probably more black people coming there than white. It’s a toss-up; many Asian people. Not so many hispanics, probably because of the expense. I like her and for 10 years now have been more or less satisfied with her work — Jim (I admit) was thinking of switching dentists before he became so mortally ill; he hated the blaring TV in the front but I can’t remember any other complaints. She is Kaiser dentist, which means she agrees to give me a discount and Kaiser pays part of a bill according to a published schedule of prices, and she is much cheaper than “outside patients,” even if you have dental insurance. I can through Kaiser get supplemental dental insurance, but I have not done that. I did go for two other opinions to see if what she proposed was not crazy — there was something in me that thought what we did on Wednesday, 7/26 crazy. One very expensive DC doctor said to be “the best” and things like that (he’s expensive, and a Trollope says, people are impressed by those who charge high and are said to be very good); he was thorough and articulate and said it is what some dentists do and he said he charged ballpark $45,000 for this, not including everything. She charged $19,000 for everything. I also went to Izzy’s doctor who is a Kaiser man — it was he Jim wanted to switch too. He said that he might have done it slower; two one week and two the next and then a final day for dentures. But I did have the Scottish trip coming up and there is a brand of thought that one should do it all at once because this way all the implants are in the right spot. What was happening in the afternoon was this guy was making sure all the implants were centered in the right spot and that’s why he put the denture on because that showed the implants were all in the right place.

Beginning sometime the next morning I have been in bad pain on and off, sometimes it’s as if the denture is too tight (pressure), sometimes burning (some of my gum tissue is raw — Dr Archer showed me that on one of computer mirrors), sometimes indescribable. So I’ve been taking pills, trouble is they make me woozy, unsteady on my feet. I’ve had two night of 9 hour sleep, unheard-of for me most of the time. If I stop for 7 hours say, then I am driven to have all four at once. Better option: take one of them every 3 hours.

I can eat only a limited kind of food. No acid, not even prune juice, or a fresh tomato or peach. They burn. I can eat pasta and eggs, drink tea after it’s cooled off. Honey graham crackers bananas, quiches. I keep biting my tongue. I am most worried about this for my Scottish tour. Dr Archer tells me it’s usual to have such pain and it usually takes two weeks before usual diet can re-commence. The tour starts a week and one half from tomorrow; it will be 16 days after this operations. No need to cross fingers, as I will go no matter what – but I feel I should be better by that time.

I have to admit I’m glad the teeth are in, I can see if I was not in pain, that this will be big improvement over my removable denture. I also look better. It’s not the original contour of my face: my high cheekbones fell sometime in my sixties after all the previous dental work and their crowns and so on fell apart. My face dovetailed into an oval. Now the jaw is slightly squarer. She has said (half-kidding) that there is something we can do for the top gum, which would allow a semi-permanent denture too. Implants after some other procedure (an x-ray says I have no bone in my top jaw — gum disease of many years, slowed down by the deep cleaning and pills I once took, but still relentless over the years since Izzy was born — I was around age 38).

One result is I have had to cancel my NYC trip to a friend in Manhattan. I am sorry for this; if I thought this would be well by Monday, I’d go, but instinct tells me that Wednesday maybe I was be out of continual pain (without pills) and able to eat more. I am sleeping an enormous amount for me. The first night 11 hours altogether, and since then 8 hours both nights. Part of this is the painkillers put me to sleep (especially a huge Ibuprofen — dentist did warn me about this one), partly why it’s said babies sleep a lot: it’s a natural restorative, a reaction to stress and helps individuals regain strength (for babies to grow).

Generalizing, age wears many of one’s parts down. Samuel Johnson’s words come to mind:

Year chases Year, Decay pursues Decay,
Still drops some Joy from with’ring Life away…

Also how dentists fleece people, gouge them. It cost me for enclosing my porch, painting the house, including all new electrical work and a beautiful lit ceiling fan, $21,000. It took several different men over 2 and 1/1 weeks to do it. A story in the Washington Post about how the American Dental Association pulls this off: “The Unexpected Political power of Dentists.” One in every four US citizens have lost all their teeth by age 65. For millions regular modern style dental care is out of the reach of their income. I’ve seen middle class types (and receptionists) resentful of those who come with medicaid to have their teeth whitened. What are they not equally in need of acceptability as anyone else? I rescued my boy cat from a life-threatening procedure one veterinarian told me way the only way to clean his teeth: anesthetize him, which means putting a tube down his throat, and other of these high-tech applying force. She said she had only lost one cat in five years. She killed that cat. The cost $495. But I need teeth to eat with and to look minimally socially acceptable.

I know that dentists take pride in their work. The man I went to for years, and who built me a sort of mouth of teeth around the ones I had — 20 year period — did regard himself as a sort of artist. Dr Archer was excited and happy that morning, and assumed I was too. She has looked proud when I said that she had done careful careful good work — she gave me her cell phone in case of emergency. She had a photograph taken of the team, me and her.

I will see my friend in New York City at the EC/ASECS conference (small 18th century regional group) this November and she said we’d do a better job of planning four days in the later spring. I did have a very enjoyable lunch yesterday with a young friend from EC/’ASECS at La Madeleine: I was able to eat the inside of a quiche and drink water; it was not the food but our shared friendship over scholarly she is scholarly) interests. My idea of good fun is good company.

I shall have plenty of time for my projects — I seem ever to end up reading, writing, watching movies, studying.

Miss Drake

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