An old woman reading — a magnificent painting done in the 17th century Netherlands
There is indeed one element in human destiny
that not blindness itself can controvert. Whatever
else we are intended to do, we are not intended
to succeed; failure is the fate allotted. Our business
is to continue to fail in good spirits. — Robert Louis Stevenson
Friends,
Accept what you are.
Do what you can.
Be glad you can do that.
These are lines I tell myself or some version of them. They help me carry on. I then try to follow them doing what’s in front of me to do that day, and doing what I tell myself I want to and shall do for the sake of events coming up that I can participate in. Participate to the best of my ability and if I can’t do what others do, live with it.
Very sad today because dear close friend for the past 4 years now has been diagnosed with terminal cancer. It has been so hard to live since Jim is gone. One can say live in and on yourself but to do this in my state of several dysfunctions takes strength, courage, cheer and yes friendships.
This one is hard. I have a new understanding — much better, much more accurate — of friendship, its limits as well as its gifts, can picture how many people live on themselves and with others. It’s probably salutary for me to see better, more clearly (like Lear is told to) but honestly I would have preferred to go to the end of my chapter without seeing. In reason or logically it should make me stronger to be able to see clearly, but like when I’ve done something that’s hard for me to do and then people tell me, each time it will get easier (say traveling or some technology), and the act(s) don’t at all get easier (but come accompanied by the same anxiety, intense reluctance, and when they are over the same intense relief). Perhaps seeing makes things more doable because I realize how others are what’s called striving or struggling to do them too. (Of course for some these acts come easy; such people are not admirable, just lucky in their genes, or circumstances.) I’m not sure seeing where others experience similar emotions and where they don’t, makes things more doable.
“Second-hand books are wild books, homeless books; they have come together in vast flocks of variegated feather, and have a charm which the domesticated volumes of the library lack. Besides, in this random miscellaneous company we may rub against some complete stranger who will, with luck, turn into the best friend we have in the world.” — Virginia Woolf
I’ve been immersed in one of Virginia Woolf’s it seems to me now hundreds of masterpieces of writing, this one a full length biography of Roger Fry. She grasps that powerful turning points for him later in life were when he faced defeat, recognized what he could do and then flourished within his limitations so as to live out his extraordinary gifts. He was tremendously lucky in who he was born to: he automatically went to the best schools, had connections to get to places where he could meet minds equivalent in finest and insight to his own, and he was born sociable: could make and knew how to sustain friendships. I am so moved by his life style: he was partly homosexual and bisexual and sustained deep relationships among men and women that were unconventional. His rooms were beautifully decorated by true art (not what would fetch money or give prestige necessarily at all) and filled every where what he was doing: books, papers, easels, paint, his food on plates because he was too taken up with what he was doing to keep up with tidyness. A man after my own heart. Fry’s art was one she understood, his principles those she lived by as Fry had understood hers: she reveled in his life, wished she could have lived it.
I’m comparing Woolf’s book to Samuel Johnson’s life of Richard Savage, considered his masterpiece in biography. What a contrast from the point of view of failure. Savage a self-deluded wildly behaved “genius,” born with no advantages but that of “intellectual greatness” (Johnson’s phrase) whose “eminence” because of such gifts just made him a better known instance of of how such things contribute very little to worldly success, happiness, or fulfillment — all of which Roger Fry knew, partly the result of his having been born with the extrinsic advantages Savage lacked and didn’t know how to or in his world could not acquire. It was not just bad luck as Savage also had some innate awful traits of vanity, luxury, scorn for those beneath him (as he saw this), and he could not control ill-advised responses, like anger (when he desperately needed to). His sexuality is not clear; at the time (not in Johnson’s biography) he was linked to at least two women, one Eliza Haywood supposedly had a child by him, but I wonder if he was homosexual or bisexual. It is as extraordinary a story as Fry’s is, only far more flagrantly breaking all taboos. The man may have been in effect homeless, living on the streets, in taverns, for some 28 years; at 46 he died in debtor’s prison, surely from exhaustion and the terrible wear and tear of his body and mind as much as anything else. Johnson was 35 at the time he wrote the biography, living on little bits of money, and saw a possible fate for himself in Savage.
“They are surely happy,” said the prince, “who have all these conveniencies, of which I envy none so much as the facility with which separated friends interchange their thoughts.” — Samuel Johnson, Rasselas
Van Gogh, A Field with Poppies — Woolf begins and ends her biography of Fry with his utterances about poppies
I’ve been following a Future Learn course on autism for three weeks now and have some thoughts about it. It’s done by a group of people running a center in a British university (Kent) for people on the autism spectrum. They have a variety of degrees and positions that legitimate them — and give them salaries. What are they doing with this precious four weeks in public on the Internet they are given?
They persist in asking, Does Autism Exist? & seem to doubt there is such a condition. They know better. They present evidence it does, two of them are clearly autistic themselves — or Aspergers Syndrome as the high end of the condition, where people come closest to non-disabled functioning and are highly intellingent in reasoning, writing, reading, understanding, used to be distinguished. Logically from what they show, if it’s amorphous, cannot be confirmed by scientific method that is unassailable, and manifests differently, there is a (laughably) strong base of similarity. Like cancer, the basic disability or problem comes in different manifestations, but we don’t doubt cancer exists.
I’ve decided that they mean to counter intense hostility by the neurotypical world: my experience is the hostility only goes away when a NT has an autistic person in their family or as a friend. Even then, not all the time, and many inside a family especially (where they cannot get rid of the tie) want to doubt the person is autistic. How painful this is. How painful this Future Learn course. It means such people don’t want to recognize the autistic and refuse to acknowledge they exist. I know this is what people without disabling conditions do with disabilities (I’ve reviewed & read enough books on disability to know this), and with this one mental they can deny even more readily.
So I don’t exist. One of my daughters doesn’t exist. Aspergers Syndrome which describes the part of the spectrum she is on and I’m almost does not exist in the book any more.
The Future Learn course is doing little good to the Aspergers or autistic person: by spending so much time doubting autism, the speakers don’t have the time to go into individual characteristics. Or they don’t want to — two of the three weeks have been unusually short (less videos, less essays than most such courses). I suspect they fear evoking ridicule and hostility. Open objections that could become obnoxious. So they don’t talk about specifics autistic people can’t do, only try to assert through photos how autistic people are social, are made happy by having friends, just don’t know the unwritten codes and social behavior that gains and sustains them.
What they have been willing to discuss (again in general terms) are depression & anxiety as “co-existing morbid conditions.” The language chosen is, shall we say, unfortunate?
Then they show reluctance to say these two linked conditions result from autism & are a response to the way society treats the autistic and how society is organized along neurotypical lines w/neurotypical expectations. So I must spend 4 traumatic hours trying to upgrade a computer with someone’s help so I can even have an app for a power-point presentation; today four more for installation; and now my older daughter may help me learn to use this software and I know that still I might not be able to do such a thing in public. Too nervous. Or I can’t travel alone without it becoming an intense ordeal because I know I get lost. These are crippling conditions and it’s natural to be depressed, would be unlikely not to produce anxiety.
I’m sure they recognize the worst problems of the disabled are mostly the result of the way the larger society refuses to recognize and help them. Books on disability begin with this insight (see, for example, Fictions of Affliction). Deaf people have gone furthest with this, declaring themselves a simply culture, which is not quite so. Not to hear is to live in danger. The alphabet is based on oral sounds
You are given room to comment as “a learner” in these Future Learn courses and I watch people dialoging or commenting alongside one another. So I told the people who invented and have enacted this course they are not helping the autistic by this approach and they are not countering the hostility of the non-autistic by their innocent films (showing autistic and non-autistic babies interacting and then supposedly disproving stereotypical pictures of how autistic people look).
It’s them being timid and is, unfortunately, matched by timidity I’ve seen in other of these Future Learn courses: say on colonialism. The people there were afraid to offend (I now realize from having taught two courses in the Booker Prize book formula and discovered that people drop the course because they identify with the settler colonialists, the imperialists) and spoke in jargon-filled words (like marbles in their mouths) lest they be understood too readily.
Katy Murphy as Jenny Wren from the 1998 Our Mutual Friend by Sandy Welch
From Charlotte Mew’s The Changeling
Sometimes I wouldn’t speak, you see,
Or answer when you spoke to me,
Because in the long, still dusks of Spring
You can hear the whole world whispering;
The shy green grasses making love,
The feathers grow on the dear grey dove,
The tiny heart of the redstart beat,
The patter of the squirrel’s feet,
The pebbles pushing in the silver streams,
The rushes talking in their dreams,
The swish-swish of the bat’s black wings,
The wild-wood bluebell’s sweet ting-tings,
Humming and hammering at your ear,
Everything there is to hear
In the heart of hidden things.
But not in the midst of the nursery riot,
That’s why I wanted to be quiet,
Couldn’t do my sums, or sing,
Or settle down to anything …
I’ve finally taken to sitting in my sunroom, only this week through the windows I saw much rain. It is very quiet there, no TV, no computer, no radio, just a silent clock. A comfortable chair, tables, lamps, some of my books, two smaller bookcases of DVDs, a thick cream-beige rug, the walls a soft light green. I read more this way. Settle down to my book friends.
My room of my own in the evening: during the day imagine Snuffy cat sitting along the top and Clarycat by the radiator, me in the chair …
I know some peace here,
for peace comes dropping slow
Miss Drake